nutrition

We decided that focusing on nutrition would definately be a help in fighting this disease.
We read several nutrition books and internet research and came up with a slew of supplements that were out there that were supposed to fight cancer. Unfortunately, since it was the holidays, it was impossible to get any professional advice because everyone was on vacation. We decided to try taking supplements on our own, but this turned out not to be a good idea and made Mark quite sick for a day. We were finally able to make our first appointment with a nutritionist. We had picked Evan Ross because he came a referral from UCLA and was also a 10 year GBM IV survivor himself. As luck would have it, he too was on leave until the end of January, so we met with his protege...

Name: Anna Brantman/Evan Ross
Location: Cedar Sinai
Date: 12/29/05

Review of medical history
Physical examination: blood pressure-110/70
- saw white coating on tongue which shows that there are some
- body will be able to handle some cleansing, can handle raw diet (30% vegetable,40% grain-millet,barley,quimoa,
- 3-4 cups juice a day, carrot/wheatgrass(1oz a day get to 2oz 3x day)
- Sprouts, mung bean, broccoli, sunflower sprouts, almond sprout
- Legumes (no soy beans) kidney, black, mung, aduki, pinto
- Salmon, cod, sardines
- Some eggs, but not too many
- Get vegetarian home macriobiotic cookbook, soups (grain based) “healing with whole foods – diet c”
- Dill, garlic, onion, basil
- Goat cheese
- Tomatoes, carrots, beets, bell pepper, radish, asparagus, potatoes, cabbage, mushrooms, broccoli
- Apple,papaya,pomegranate,persimmons,grapes,berries (no citrus,pineapple) no melons,
- believe in creating environment that is hostile to cancer
- tumeric/curcumin
- stevia,small amounts of raw/processed honey, maybe not maple syrup
Talked about cell phone usage

Interaction with dilantin, Dr. Ross takes it, take it 2hrs apart from medication
Dosages of supplements
Blood type diet vs cancer related nutrition
- likes the book, but somethings are exaggerated and some things are true
How often are appointments? 1-2x week when in treatment, accupunture will be part of treatment
Can we find some one local? Will look into a contact in our area.
When is Dr. Ross going to be back? End of January.
What should we not do during radiation/chemo? Don’t do any supplements 48hours before/after chemotherapy
Will get some recipes from them.
Lactifilus/bactilus-acidofolus for stomach
Antioxides

Overall, we just got a list of foods at this initial visit. Our main goal for meeting with this office is to meet with Dr. Ross (which we actually have to wait a few more weeks to do) and to get an initial guideline about what to eat now. We have since found another nutritionist in Utah who focuses primarily on nutrition for people with brain cancer. We have sent her all of our information and are waiting for an evaluation.

For people still looking for ways to help us out, here's some things that would help:

tried vegetarian recipes that don't contain any animal products or no nos from the list above
gift certificates to Mother's Market & Kitchen or Trader Joes

Thanks for continuing to read up on us :)